Tag Archives: Home & Family

Long Covid And Me

It took way too long for us to figure it out, and that figuring is a story unto itself that is too long for this post, but I have Long Covid. The impact can best be summed up thusly: it is a disability, not a disease.

Disease suggests that I might get better. I wouldn’t mind getting better, of course, but as of this writing there’s not only no cure, there’s no consistent treatment, and many medical professionals will mis-diagnose Long Covid, or even deny that it exists.

So, disability. The “disabled” demographic is perhaps the only marginalized minority group that everyone who lives long enough will eventually join. My own disability presents itself much like chronic fatigue (ME/CFS). On some days I’m fine. On others I may find myself light-headed and struggling for breath as if I’d just run a mile when all I’ve done is stand around in the kitchen talking to to the kids.

Please don’t send us your medical advice. That “too long for this post” story begins with two years of visits to specialists wherein we ruled out all of the usual suspects. You may have heard the old aphorism “when you hear hoofbeats, think horses, not zebras.” We’ve ruled out the horses, and looking around at the (metaphorical) scenery, we’re not in Kansas anymore, this is the Serengeti.

But I’m not here to ask for help, or to garner sympathy. I’m here by way of explanation: the things I used to do, the things I still WANT to do? I can’t do all of them anymore. I’d love to be creating a daily comic strip and reviewing 1st-run movies on the day they arrive in my local cinema, but those aren’t options for me anymore. The point of this post, which I’ll admit I’ve taken my time getting around to, is to explain what I can do, and what you can expect.

First and foremost: Schlock books in print! This is taking longer than we wanted it to, but we have a plan and we have the ability, and we hope to get books 18, 19, and 20 in print over the course of the next 12 to 18 months.

Seventy Maxims Reprint! This coming Tuesday we’re launching a Backerkit project to reprint the Seventy Maxims books, and as part of that we’ll be doing an all-on-one-page Seventy Maxims poster. Click either of the links above for the pre-launch page.

Using My Powers for Good: I’ll be posting parts lists and instructions for some of the mobility and workplace aids we’ve custom-built for me. Long Covid affects millions of people worldwide, probably tens of millions, and this little platform of mine can be used to make their lives easier.

Reviews of Movies, Games, and More: I can’t offer reviews of new-release cinematic things because I don’t go to the theater anymore, but I do still consume a lot of media, and it’s quite easy for me to write reviews. In fact, the fancy zero-gravity chair I use to keep my heart rate manageable is the same one I’m sitting in while I write this AND while I watch TV, listen to music, and read.

I’m Not Letting This Stop Me: Yes, I’m disabled. I can’t do all the things I used to do, and I can’t do them as quickly, but I can still do quite a bit. So I shall do quite a bit. And this place is where you’ll always be able to find me doing it.

I hope you’ll come back and find me again soon.

Over-Reaction is the Best Reaction

We’re self-quarantining here at Chez Tayler, but the State of Utah and the LDS Church are helping things along immensely by canceling school and church for us. We’re extremely fortunate that we already work from home, and are able to steer clear of public places without seriously impacting the family finances.

Rewinding a bit—my asthma is still on overdrive, but we’re otherwise healthy, and free from any COVID-19 symptoms. We’re doing fine. This social distancing thing is something we’re going to take seriously, though, because the best possible outcome is for us to look back on this and say “maybe we over-reacted.”

You see, the next-best outcome is a terrible one. That’s the one where we look back on this and say “It’s a good thing we did all that, but we should have done more, and sooner.” We don’t get that outcome unless neighbors¹ are dying.

The worst outcome, at least for us, is the one where we discover just how sick this coronavirus can make a 52-year-old asthma sufferer, and exactly how deadly it can be to run out of beds and respirators in the ICU. And if we can get through the next few weeks without that happening, perhaps without that ever happening, we might feel like all our precautions were over-reactions.

And the luxury of being alive to whine about over-reacting is one I plan to cherish.


¹ Maybe next-door neighbors, maybe folks from Samaria. We try to define “neighbor” in broad, New Testament terms when it comes to things like this².
² We narrow the definition quite a bit when it’s time to visit a neighbor to ask whether we might borrow a cup of sugar.

Achievement Unlocked: Married with Married Children

The wedding was beautiful. The reception was lovely. The day was exhausting, but only because it’s hard work packing that much joy, delight, and awesome into one contiguous sequence of waking hours.

There’s a thread of photos on my Twitter feed, and if you follow Sandra_Tayler on Instagram there are plenty more.

Thank you, everyone, for the congratulatory wishes, and support, and for your patience with us as we rescheduled all our business deliverables in order to have some make-the-family-bigger¹ family time.


¹ That may have sounded a little lewd, but I footnoted it, so it’s totally okay.

We’re Having a Wedding This Week

Our oldest daughter, Keliana, is getting married on Wednesday. This has been playing merry Hell with my schedule, but it’s the very epitome of “merry Hell,” because we’re all quite happy.

Tyler and Keliana are very good for each other, and to each other, and the old saw about not losing a daughter but gaining a son seems to apply pretty well here. I mean, except for the part where they’re not living with us because they’re off to have their own adventures.

(If it’s not obvious, the illustrations in this post are Keliana’s work.)